5,000 Miles Away . . . or From Another Planet?

globe-handsI was teasing friends, families, and colleagues over the past two weeks that I couldn’t join them for any of the post-inaugural marches organized by our courageous and determined sister leaders as I had to be in Hawaii.

While my trip certainly included some vacation, it came about because of an award my daughter received for developing Curvy Girls, a foundation that facilitates peer support, leadership, and medical advocacy by girls with scoliosis. This blog post isn’t to brag even more (honest!)…though I am happy to talk about my daughter and this great organization at any time! Rather, I want to share about the incredible experience we had with the awards program which was hosted by the Medtronics Corporation’s foundation.

Recognized along with my daughter were people of all ages and from all corners of the globe who were stricken by a range of diseases, some life-threatening and others disfiguring, only to find relief from major advances in medical technologies. As a result, each awardee has been able to devote “their extra life” to helping others with the same afflictions. Some of the inspiring stories included:

  • Natalia of the Ukraine, stricken as a child with a rare neuro-muscular dystonia disease now saved by a device that allows her to be able to move – and to become a strong advocate for treatment and rights of similarly afflicted in eastern Europe. She also, through her interpreter, gave me a real first-hand perspective on the Ukraine-Russian issues.
  • Advanced cardiac disease and cancer care devices transformed the lives of an advocate in South Africa (who is also a breast cancer survivor) to fight for the health rights of indigent Africans . . . it helped an 82-year-old who now promoted senior singing groups . . . and the former Minneapolis three-term mayor R. T. Rybak – stricken by a near-fatal heart attack just days after leaving office – now devotes his “extra life” to closing achievement gaps among children of different ethnicities.
  • Several young adults with Type 1 Diabetes saved by insulin pumps now engage and educate children and young adults similarly diagnosed in India, Brazil, China, and Sweden to lead long and healthy lives despite their disease.
  • A survivor of severe obesity in Spain uses her new life gleaned from bariatric surgery to provide patient support and education about obesity to others similarly afflicted.
  • Lucia of Italy suffered from severe bladder disease but was saved by new therapies that now allow her to promote awareness in the medical and political communities.
  • Yonkuan of China – his life saved by Deep Brain Stimulation – now works with the Chinese Red Cross to reach out to others suffering with Parkinson’s disease in that country.
  • In North Carolina, opera singer Eric’s career was cut short by a near-fatal stroke. A revascularization device now allows him to extend the community reach of the music therapy program at his local university.

And if there wasn’t already an ocean of tears sprung by these inspiring tales, there was also the story of 92-year-old Fran Heitzman who danced and sang through the weekend thanks to his new pacemaker. It has allowed him to grow the charity he started when he was a church custodian, accepting and distributing furniture through 150 Minneapolis charities to people in need. It began with one crib 30 years ago to what is now a fleet of 11 semi-trucks that move household goods to thousands of people in need.

It was clear to me that most all award recipients were of modest means who were gracious and humble for the recognition and the long weekend retreat sponsored by Medtronics. Thanks to the medical technology most often made accessible to them by policies of their national government, these inspiring people have chosen to become productive citizens and work to ensure that others can be afforded the same care they received.

If our new President really wants America to be “first,” why can’t America pledge to be first in advancing health, mental health, and drug addiction care?  We have come so far in innovation in these fields with so much promise in the pipeline – along with armies of people ready to help promote their effective use. Do we really want to achieve “America First” by building a “great wall,” by reviving coal mines or other fossil fuel industries, or by squeezing other countries for increased tariffs in trade deals?  Instead, let’s leverage the economic and social impact that advancing our health and rehabilitation industries can inspire here and around the world!

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Posted in Adversity, health, mental health, wellness

A Simple Step to Help Prevent Tragedies

emily-scpd-training

MHAW’s Emily Sussman speaks to Suffolk County Police Department recruits. Seated to her left is Alexis Rodgers.

Seattle Seahawk Wide Receiver Doug Baldwin, son of a Florida police officer, spoke recently to Sports Illustrated in response to the actions of Colin Kaepernick.  Kaepernick, you might recall, is the 49ers quarterback who has been widely chastised for choosing to not stand for the national anthem before NFL games as a call for action to address the rash of tragic incidents involving police and African Americans. Baldwin noted, “…training for law enforcement is not universal across the country . . . there’s 18,000 [law enforcement agencies] in the country, and they all have their own specific training regimen, their own policies.” For example, he added, “…there are a lot of different definitions of ‘de-escalation,’ and I think that’s where the root of the problem is.”

Law enforcement personnel and people with psychiatric disabilities know all too well about the precarious nature of these interactions. On October 17, 2016, a rank-and-file NYPD officer fatally shot 66-year-old Deborah Danner, a woman with schizophrenia, who swung a baseball bat at him.  Unfortunately, the officer never had the benefit of the Crisis Intervention Team (CIT), an evidence-based training model that NYPD recruits now receive.  The incident brought memories of other such death-by-cop tragedies that trace back to the 1984 death of Eleanor Bumpers in the Bronx (see On the Tragic Death of Deborah Danner).

Police Officer Ray Sitler, who coordinates the mental health training for the Recruit Training Center for the Suffolk County Police Department, invited Association for Mental Health and Wellness (MHAW) advocates to augment the department’s mental health curriculum with their own personal, lived experience with psychiatric disabilities, including their interactions with law enforcement.  P.O. Sitler shared that he was inspired by his own experience as a father of a young man with autism and the vast gaps of misunderstanding that surrounds that disability.

Facilitated by Alexis Rodgers, MHAW’s Coordinator for Community Education, four advocates poignantly told their stories and gave critical guidance to nearly 200 police recruits. Emily Sussman, an MHAW staff member open about her own recovery, was impressed that, despite the formality of the recruits wearing their dress grays and sidearms, “they were a warm and interested group.  They asked interested and invested questions about how to approach someone, the kind of language to use, and demonstrated interest in us as individuals.”

Alysha, another advocate, shared a difficult interaction she had with an officer who stopped her for a minor motor vehicle issue while she was experiencing a lot of personal distress. She told recruits that the officer was cold and off-putting, and didn’t recognize her distress, which made her feel like verbally lashing out at him.

The speakers discussed a range of issues that officers might encounter such as responding to suicide threats, harassment by neighbors, distressing behaviors, roommate and community disputes, medication side effects, and substance abuse.  The recruits asked thoughtful and sensitive questions: “What would an officer have better said to you in that situation?” “What does the medication do?” “What helped you to get to where you are today?” “What about your family?” “What’s your understanding of why you have that illness?” “What happens if you drink or use drugs while you’re not well?” and dozens more.

Raymond, another advocate, said that myths that too often accompany people with mental illness, such as violence, and how myth alone can make a situation worse. Andrea, the fourth advocate, passionately explained the difference of how she appears to others in times of depression and in times of high-energy mania. The officers were transfixed and applauded the speakers loudly, including a couple of standing ovations.

Police recruit Dario Perito, who was previously an NYPD officer, said that the session reminded him of interactions he had with homeless people at train stations. While many fellow officers advised him otherwise, Dario made it a point to get to know the homeless people there more personally. “They told me a lot about why they avoided shelters and outreach workers as well as mental health and drug treatment facilities.” Recruit Luis Cabrera said he loved hearing the personal stories from MHAW advocates as they helped confirm for him that “people are people” and need to be treated with kindness when they are not in a good place.

Another recruit, Michael Smith, approached me after the meeting and asked whether, once he was assigned to a precinct, it would be a good idea to introduce himself to programs and community residences on his beat. I told him about the great relationship our clients in Ronkonkoma have – at our Pollack Center as well as at our local residences – with P.O. John Seppi of the Fourth Precinct and how his warm and confident involvement alone has frequently eliminated tension in distressful episodes.

Advocates know that too often it takes tragic events to move institutions to self-examination and action.   However, progressive police departments like Suffolk demonstrated in this training that meaningful discourse can bring powerful sensitivity and set an atmosphere where conflict can be resolved safely. And Doug Baldwin, along with other athletes, are now helping to lead these community conversations.

As Emily Sussman noted, “I think we really brought home the message that we are just people like their friends, family, and colleagues.  It was a wonderful afternoon well spent.”

Such a simple concept.

Our gratitude to Police Officer Ray Sitler and the Suffolk County Police Department.

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Posted in Law Enforcement

Thanking Those Who Have Gone the Extra Mile

veterans-day-imageOn this Veterans Day, we recognize all Vets for their service to protecting our country in peacetime and in conflict. I want to especially recognize those Veterans — such as those who work or volunteer as part of our agency’s staff and board — who have extended themselves beyond their service experiences to help others and our communities.

At the Statewide Dwyer Project conference last month, the keynoter was young Army Veteran, Andrew O’Brien, of Texas, who shared that his volunteering for service was not about patriotism but about finding a sense of purpose for himself following a childhood of horrid abuse and neglect. However, after a challenging combat experience in Iraq, while still in the service, his journey included an attempt to take his own life.

After returning to, and completing, a distinguished service career, Andrew later founded the Wysh Project (www.wyshproject.org) not only to help end Veterans suicide, but building on his own experiences, to help everyone who has past experience from trauma from any source move “from trauma to triumph.”

Responding to Andrew’s talk, one recovering Dwyer Vet asserted: “We are not broken. We are strong. We saw and participated in stuff we expected but weren’t fully prepared for. We are injured, but because of our strength we can take ownership of a helping role in helping others overcome injuries and help build community.”

As we thank our Vets today for their service in uniform, let’s also thank so many who have gone the extra mile to help enrich our communities as places of caring, hope, and opportunity for all people who face adversities.

Posted in Dwyer Project, Healing, Joseph P. Dwyer Veterans Peer Support Project, PTSD, Suicide

Why we do Mental Health Awareness Week?

mha-week-2016-revised-logoThere are a myriad of health education weeks and months for so many different diseases, each with campaigns and events to promote vital information that can engender personal, social, political, and health profession activation.

Mental health awareness encompasses a huge umbrella that embraces the impact and challenges of all these diseases – plus mental illnesses, psychiatric disabilities, stress, trauma, and comorbidities with substance use and developmental disabilities – and the inevitable family distress that comes with all of these. Left without intervention – such as education, peer and family supports, rehabilitation, and medical and psychological care in any combination – any and all of these mental health challenges are associated with the social consequences of employment and income instability, poverty and dependency, family strife, homelessness, incarceration, marginalization, and suicide.

The Centers for Disease Control (CDC) states that “published studies report that about 25% of all U.S. adults have a mental illness and that nearly 50% of U.S. adults will develop at least one mental illness during their lifetime.” There are a few other disturbing facts that we need to accept and bring to personal and public health discussion and debate:

  • Mental health problems are associated with increased occurrence of chronic diseases such as cardiovascular disease, diabetes, obesity, asthma, epilepsy, and cancer. Similarly, mental illness is associated with lower use of medical care, reduced adherence to treatment therapies for chronic diseases, and higher risks of adverse health outcomes.
  • The largest psychiatric facilities in our country, and right here on Long Island, are our municipal jails and State prisons whose inmates are disproportionately comprised of minorities who rarely have access to culturally-relevant community mental health information or services.
  • The national suicide rate among Veterans is still nearly 22 per day – despite public awareness of this national tragedy. Furthermore, the rate among Veterans who served during, or after, Vietnam (the term “peacetime” Veteran is a frequent distortion of their real experiences) is rising. This pattern also aligns with that of middle-aged men in general.
  • Around 20% of the world’s children and adolescents have mental health problems, about half of which begin before the age of 14.
  • Nearly 75% of people who access public mental health services have reported being victims of violence and/or trauma of some kind in their lifetime. People with mental health conditions are far more frequently victims rather than perpetrators of crimes.
  • 22% of people who become homeless have serious mental health problems.
  • Mental and substance use disorders are the leading cause of disability worldwide and are the second most impactful conditions affecting workplace productivity.

The more than forty events being held during Mental Health Awareness Week (www.MHAWeek.org), October 2nd through the 8th, are as broad as the umbrella itself and include films, conferences, walks, yoga, seminars, open houses, and more.  Attend any one activity or event and you will be sure to gain new insights that can enlighten and inspire you, your family, a friend, or a neighbor,  and perhaps enrich or even save a life of someone you care.

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Posted in CDC, Centers for Disease Control, Mental Health Awareness Week, Suicide, Veterans

When Therapy Mirrors Politics

political-anger-660x350-1460619818The passing of Labor Day signals the start of what is often called the “silly season” – the two month run-up until Election Day.  But this year, things have gotten more than “silly.”  We’re dealing with a torrent of vitriol of character assassination, fear-mongering, and a loss of any clear sense of truth. This, it seems, is where our culture has evolved both in our political discourse and in the treatment and valuation of our leaders.

I was thinking recently about a graduate school experience where I participated in a weekend of what is called “T- group” therapy. Such psychotherapy is facilitated by a distinctly hands-off leader who began the session with a brief and concise charge to the 10 participants: “This is your group. You will spend more than 20 hours together. You will need to choose how to make the most of your time together.” From there, he remained in the room but left us to our own machinations. What ensued was a marathon of highly-emotional discourse in which no one was immune from anger, conflict, sadness, and moments of what felt like hopeful and healing insights. The lack of an active leader felt at times like abandonment while at other times empowering.

Toward the end, the silent leader stated, “You have only a couple of hours remaining. You need to consider how you want your time together to conclude.” Despite some painful wounds that were opened, the group became determined to close the experience with a process of profound caring, healing, and even gratitude.

Sometimes the therapy experience really can mirror life. Our November 8th national election will inevitably be bitter. And like my T-group, we will need to find a way to conclude. Consider it our own unique American mental health conundrum:  How will we collectively heal from this two-year toxic assault on our sensibilities?

Can we take this on by ourselves? Or, will we feel like we have to depend on new leaders to make that happen?

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Posted in Healing, Politics, T-Groups

Help a Veteran neighbor this July 4th weekend: Silence the fireworks bombs

The other night I was sitting on my deck when a loud explosion shocked me in its suddenness and intensity.

The evening before, I was at an event where my friend, Patrick Donohue, was performing as a comic. Patrick is a combat Veteran who founded Project 9 Line, a non-profit that helps Veterans reintegrate back into civilian life. As part of his routine, Patrick made a joke about the “benefits” of PTSD, like scanning rapidly for danger while driving.

Patrick has been very open about his PTSD. In fact, last year he was interviewed by News 12 about how he used to find cnews 12.jpgomfort in the quietness of the basement of his house when the July 4th “explosions” would begin.

Our Veterans won’t be vocal about this issue – except, perhaps, when asked. Better to suck it up and deal with it…or make jokes about it like Patrick and his “Comedy Assault” brethren. That’s more the military way.

But PTSD is no laughing matter. It’s the signature injury of the post-9/11 wars and treatment for it is all about building coping strategies and resilience for the discomfort, the anxiety, and the depression.

In this week’s Stars and Stripes, writer Elizabeth DePompei related the experiences of one Veteran:

The first time he heard the crack of fireworks around July 4th the following year, he realized how wrong he was. Thomason, a 28-year-old Louisville native…remembers being at that first Independence Day party when a flashback was suddenly triggered. He was either playing a game or in a conversation with his wife — he can’t remember which — when someone behind him set off fireworks without warning. “When that happened, I physically just jumped and didn’t really know where I was for a minute,” he said. “I had a flashback and we had to leave, and that started to be a trend.”

Dr. Frank Dowling of Long Island Behavioral Medicine notes, “Many sights, sounds, and smells may trigger anxiety, panic attacks, or flashbacks to traumatic events from their service-related experiences.  This includes the sights, sounds, and smells – even vibrations – caused by fireworks.”

Combat Veterans have sought out “safe spaces” to avoid fireworks during the Fourth of July season, according to Marcelle Leis, Program Director of the Joseph P. Dwyer Veterans Peer Support Project. Programs like the Dwyer Project are working this holiday season to find alternative solutions, such as movie theaters, to find solitude while Americans patriotically celebrate Independence Day.

It’s a sad irony that many Veterans feel the need to relocate and isolate themselves while their family and friends enjoy a weekend that’s all about the freedoms they fought to protect.

We live in a region where there are many opportunities to enjoy professional fireworks events. Veterans with PTSD will tell you that these planned, supervised fireworks shows are less apt to trigger PTSD symptoms.

This season, can’t we spread some patriotic and neighborly goodwill and bag the loud boomers at least in our neighborhoods?

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Posted in PTSD, Veterans

Words Can Kill

StoltzAnd then there’s the guns.

Our nation grieves again for the victims of yet another mass shooting, this one the largest, most horrific scale we have experienced with guns.

As has become requisite now for these assaults on people and sensibilities, terms of terror, disaffected rage, association with hate groups, emotional disturbance, and mental illness become the focal points for public debate.

I have little professional understanding of hate; I have personal and professional understanding of mental health disorders. Here’s the connection:

Denial.

When someone we care about descends into mental confusion — which often is accompanied by addiction — our attempts to engage and intervene with someone are rebuffed by the person specifically because holding onto one’s beliefs carries its own reward, despite the loss of love, caring, employment, or status. Damaging and hateful words of others are candy for denial.

True psychiatric disabilities are always preceded by episodes of decline of varying lengths. The idea that someone “suddenly snapped” is for all intents and purposes a myth. Movies and headlines embrace the “he snapped” concept because it carries more drama than the true descent associated with mental and emotional despair.

It is this period of time — before the act — that provides an enormous window of opportunity for good public policy. Waiting periods, references, reviews of police reports including for domestic violence (in this Orlando case), review of other law enforcement investigation (the FBI in this case, too), all offer opportunity at crime prevention and a sustained, multi-pronged mental health intervention.

It is awful to watch the horror of the event . . . of those who were in that nightclub followed by the grief of victims’ families.

It is even worse for people in recovery, their families, and mental health professionals because we all know that a little real education about mental distress coupled with some sensible interventions can prevent tragedy.

Denial does not close discussion. It’s the very point where education can happen.

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Posted in Gun Violence, Guns
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